June 25, 2019
The Spring 2019 issue of the Partners Biobank newsletter for Biobank participants has been released.
May 22, 2018
The Spring 2018 issue of the Partners Biobank newsletter for Biobank participants has been released
September 22, 2017
This summer, I got an email with the subject line, “Help researchers at Mass. General or the Brigham make discoveries.” Think the Boston hospitals — Massachusetts General Hospital and Brigham and Women's Hospital — were hitting me up for a check? Wrong. Not long afterward, as I was passing through a busy lobby of Mass. General, an eye-grabbing kiosk invited me to “Join us to help shape the future of healthcare.” Once again, it sure sounded like a charity appeal. But the recruiters didn't want my money. They wanted my DNA and my medical records, to help them build a massive database for research called a biobank.
July 12, 2017
The Partners Biobank has started returning research results to Biobank participants. These results are genetic variants, also called mutations, that indicate a high risk of developing certain conditions and diseases. The purpose of returning research results is to provide Biobank participants with information that could positively impact their clinical care. Results being returned are genetic variants that the American College of Medical Genetics (ACMG) defines as being actionable. This means that there are screening tests and/or preventative measures for people who have these variants.